My name is Lynn Carle. My husband Tom and I are the parents of Histio angel Ethan Thomas Carle. We started Champ's Cause in memory of our beautiful son, who earned his angel wings on May 9, 2012 after a very brief but torturous battle with a rare disorder called HLH--Hemophagocytic Lymphohistiocytosis.
The Ethan Carle Memorial Fund has been established to raise awareness, further research for HLH and other Histiocytic disorders, in cooperation with Liam's Lighthouse Foundation and to support other families who have affected by this horrible condition. Because of the rarity in which HLH is prevalent, it is considered an "orphan disease"; therefore no substantial government funding for research is given. All research is currently being conducted through the generosity of private donors as well as non-profit organizations that were started by other families affected by Histiocytic disorders.
Our "Champ" fought so hard and bravely during his illness. We are committed to continue the battle he could not. Through his guidance from above, our unconditional love, and the support of our family, friends, and community we will make a difference in the world of Histiocytosis.
Memory is the one gift from God that death cannot destroy.